It has been so long since I have written that I feel lost. I think the straw that broke the camels back fell on me. I hate to say it but I don’t remember but one other time in my life when I felt so miserable. My IBSD is out of control even though I have tried one round of medicine. I have asked for a second round. I am praying that I will not have to go through all the gastro tests to get this under control.
For those who read my blogs you know that this IBSD triggers my anxiety and panic attacks. I think that all of this is related to all that has happened but also with having a new doctor who doesn’t treat the same and doesn’t understand the meds that I need. He doesn’t want to proscribe the way that I am used to and then when I need meds he doesn’t agree with what I am asking him. He did get a letter from my previous doctor but I don’t know that it has helped.
For most of my life I have managed to stay off any meds whenever I can and don’t ask for them unless necessary. I reduce them as soon as possible but I don’t think he believes that. I will be searching for someone who will understand and hope to find one soon.
In the meantime I have such an assortment of meds that it is really crazy. I won’t go into the whole list but I have way too much of things that only help slightly and not enough of the ones I need.
Sorry for the hard post but I am frustrated and ill and need prayers and support. I want to get back to myself.
I wish that this quiet time away from the busy world was one that I could enjoy but not to be. My husband is still in care. He’s physically all right but still not mentally well. He is better. It is just so hard not knowing how this will all come out.
I don’t know if I will have the man I knew or someone else. Things will work out but the uncertainty of it all is harrowing. At this point the virus is of less concern to me. During this time not only has the world outside of my own surroundings changed but also inside my circle. Many people are caught in this. I am not the only one struggling. Some have more grievous things to bear.
I seem to do really well for a while and then I falter. I suppose this will continue until there are some answers forthcoming. Waiting has never been my strong suit. I am certainly learning to endure patience.
It will be different for us when we come out of this. I pray there will not be another pandemic coming any time soon and that we can be better prepared. Everyone is blaming everyone else the world over but I remember hearing some words of Pope Francis pointing out that if we all blame someone else them we have to accept that all of us are to blame. There are certainly judgement errors aplenty to share.
We must change. We must understand the nature of the damage we have done to the earth. Soon it will be too late and we must live with the guilt about what we are leaving our great grandchildren. We have to learn to live together over the whole world or there is no hope.
I pray that we can.
My husband remains in hospital without any word on a diagnosis. I have done some research on my on and have some ideas to pass on. As a nurse I do know when the information is reputable. I will just have to take one step at a time.
I have had so many calls from friends that it has given me such a boost knowing how many care. This is just a bad time to have this happen but there is nothing different to do. I will continue to attempt to talk with the physicians working with him even though so far I have not heard from a single one. This is a common problem with hospitals and doctors and I will be stronger about insisting to discover what they are thinking. The hospitals here are not yet full of covid patients and are actually functioning well so there is no excuse for no information.
Tomorrow is a new day. According to the nurse they have some labs pending so maybe some answers will come.
Placating my anxiety, depression and stress with prayer, TV and walking outdoors. I am unable to do some things as my brain is not up to par.
When nothing can be done it is necessary to accept that and do only what is possible. The prayer from AA sums it up perfectly.
God, give me grace to accept with serenity
the things that cannot be changed,
Courage to change the things
which should be changed,
and the Wisdom to distinguish
the one from the other.
Thank you for your prayers.
Since my husband developed this UTI life has not only been abnormal because of Covid 19 but also because of dealing with someone who can’t think straight. It is better but not totally gone. God bless all those who live with an Alzheimer’s patients. I really don’t know how you do it.
The anxiety has taken its toll on my mental health and my body. IBSD has flared up after being gone for quite a long time. I know that all of this will end but I want to hurry it up. Living as we do we are mostly alone. We have some family here but they are unable to help much. It is not the day to day help I miss but the comfort of hugs and contact with friends. I am a person who knows the comfort of human touch. I count on it. It is what I miss the most. With my husband not well I feel very alone.
This is my time to spend time with God and that has been helping. I also keep in mind my grandmother whose favorite quote was “and this too shall pass.” She had such strength and faith.
There are many who are suffering much more that I and I hope they can find the resources they need, stay well, and survive the physical and financial crisis. There will be many to help in the days to come and it is up to us to do what we can.
Remember my favorite quote:
‘ALL WILL BE WELL, AND ALL MANNER OF THINGS WILL BE WELL’
Julian of Norwich.
I often think of Robert Frost’s poem about building a wall. He is thinking about what happens when we do this. We can wall things out and sometimes we have to do that to survive. Many victims of abuse can only manage by walling the abuse out. Some have even developed different personalities to not be present themselves. This is the extreme example.
However, we do need to be careful about walling those around us out. Usually what we need for healing begins outside of ourselves. We need others whether in the form of therapist or loving friends/family. We have to be careful not to wall out the help we need. If we are fragile it is so easy to stay inside our protective shield but this is only a temporary solution.
Try and find those who can help to pull you out from behind the wall and eventually tear it down altogether. In that place is healing.
Life can be challenging. Sometimes things become overwhelming and we feel as if we are drowning. The feeling that one more thing will put you over the edge is awful. When that happens we have to use any tools we have in our tool box to bring us back from the edge. Many ideas have been brought up in the blogs on Word Press and I have tried many of them. Some work and some don’t. The good news is that we can try different things and see what works for us.
My granddaughter says that every school should teach Cognitive Behavioral Therapy. She says that all children need to learn the skills that are taught in that program. I suspect she is right. There are so many issues cropping up with children today that we have to change something.
I feel that I was lucky to have learned many coping skills from my mother but I am not sure that many people have that advantage today. We are such a society of quick fix that we don’t learn to cope with anything. One of the doctors that I worked for said that what people want is to come to a drive-in window and have the doctor reach out and say “heal” and it will be done.
Coping is learned when faced with real life. If we think that nothing should ever go wrong we are much mistaken. I worry about people who have never faced up to a major problems as they have not learned how to cope.
One of my favorite writers https://earthwalkingworld.wordpress.com/2019/11/16/let-the-looting-begin/ began his post today talking about the freedom we achieve when we are first able to drive. I would like to talk about the opposite problem
As we grow older our ability to drive can decline. Whether it is due to vision, slowed reaction time or mental losses we may have to stop driving. In many European countries this is not such an issue since public transportation can take someone anywhere. Those who live in city centers can walk many places and if they are able to do that don’t lost that freedom.
For most of us who live in the US driving is our key to mobility and therefore our independence. The hardest thing to convince us as we age is that we can no longer drive. For those who have enough money to Uber everywhere it may not be a problem but the majority can’t do that.
For those who live alone losing the ability to drive can cause isolation which leads to depression and going downhill. I wish there were a simple solution but there really isn’t one. As the age of our population increases the problem will become more acute.
Creating a volunteer group of drivers who would be willing to help people run their errands and be with friends would be a good solution. I wonder if anyone has done this if so I haven’t heard of it. I hope someone does it in the future.
I grew up with this movie. In 1952 I was twelve years old. It became one of my favorite all time movies. This is dancing and singing in the rain. An easy thing to do when things are going well. Not so easy with life is not so good.
One thing I have found over the years. Singing helps me. It is hard for me to sing and feel bad. Especially if I sing something cheerful. Now, I don’t claim to be a great singer but I do enjoy it. It can often chase away the gloomies and set me on a better path. I will just put on some music that allows me to see with it and let loose. In the early 1960’s it was the era of the folk singers. I love The Kingston Trio, The Limelighters, Mamas and Pappas and many more. To sing with them perks me up. (Some you may not have heard of)
Finding something that perks you up is wonderful. It is easy to let the gloomies get you down. If we sink down it grabs onto us and we sink into the mire of depression. It is good to feel that coming and do something to stop the slide.
Find your own thing that will lift you up and use it!
Sometimes we build walls around ourselves to stay safe. We wall out anything that hurts us…whether physical or mental. An extreme example of how the walls work is the patient written about called Sybil. Dividing yourself into separate people puts up walls between the root person to help her. Another example is Howard Hughes who physically walled himself in.
Our various forms of mental illness can be walls. Ways that we have adjusted to the world in order to survive. The illnesses seem negative but at some time they may have been essential. (this may not include some types of illness)
The walls are hard to pull down. They are worse than masks. Masks seem more temporary but the walls have been built with bricks and mortar. Our anxiety can cause us to retreat from the world. We only seem safe if we stay under the covers on our beds.
When we are suffering it is very difficult to pull down the walls and move out of our comfort zone. When I am anxious I don’t want to go anywhere or do anything. I curl into a fetal position mentally and physically. I have erected a wall around myself.
I have been working on the things that help me to remove the wall one stone, one piece of mortar, at a time. Meditation, remembering to breathe, focusing my mind, distraction are all things that help. With persistence these tools help me to keep the wall from growing and even begin to keep sections down. Progress is happening which gives me impetus to keep on keeping on.
Don’t give up. That wall can be knocked down a little at a time. Just keep on!
Sometimes everything that can go wrong will and there is nothing you can do about it. This week has been that way. We were supposed to be able to have a closing on a house we are selling and nothing has gone right. Part of it has been minutia. T’s to be crossed and i’s to be dotted. It just seems that every time we thought it was done something else has cropped up. Who knows how this will end but I know that sometime it will.
It is just so hard to not let things that drive you crazy push you over the edge. I am supposed to travel next week to visit my daughter and I am not going to let anything mess that up. I don’t get to see two of my children and their families that often and I am not going to spoil this trip by being upset.
I will invoke all of my coping skills and manage the frustration my husband and I are feeling. “This too shall pass!”