A tough time

It has been so long since I have written that I feel lost. I think the straw that broke the camels back fell on me. I hate to say it but I don’t remember but one other time in my life when I felt so miserable. My IBSD is out of control even though I have tried one round of medicine. I have asked for a second round. I am praying that I will not have to go through all the gastro tests to get this under control.

For those who read my blogs you know that this IBSD triggers my anxiety and panic attacks. I think that all of this is related to all that has happened but also with having a new doctor who doesn’t treat the same and doesn’t understand the meds that I need. He doesn’t want to proscribe the way that I am used to and then when I need meds he doesn’t agree with what I am asking him. He did get a letter from my previous doctor but I don’t know that it has helped.

For most of my life I have managed to stay off any meds whenever I can and don’t ask for them unless necessary. I reduce them as soon as possible but I don’t think he believes that. I will be searching for someone who will understand and hope to find one soon.

In the meantime I have such an assortment of meds that it is really crazy. I won’t go into the whole list but I have way too much of things that only help slightly and not enough of the ones I need.

Sorry for the hard post but I am frustrated and ill and need prayers and support. I want to get back to myself.

Moving again

Here I go again. Tomorrow the packers come and on Friday the movers to pack the pod. It will then go into storage until I get a moving date for the new apartment. I am so tired of this but know this is the last move (God willing). It will be nice to have a place that is my own. I can’t wait. There is something about this last move that really rattled me but now that I have started any packing I have to do it is better.

So many people have been touched by covid and lives have been changed. Mine is just one of them. I would have had to do this anyway covid has just made it harder and lonelier. I will so enjoy getting to meet people and have things to do.

My only concern is my two bassets who are both very anxious. The male (Crash) is going to have to have some meds as he has always had severe anxiety. We don’t know what happened to him before we got him but it did damage him and losing my husband and all the change has exacerbated his problems. Hopefully the vet will help me get him more settled. He is such a sweet boy as is our female (Tillie).

The journey of grief

Grief is a funny thing. Some people think it follows the pattern of acceptance by Kubler-Ross. That pattern was actually developed about acceptance of a coming death. In my mind grief is different. Having run two years of grief support group and feeling my own grief I think it is much more erratic. It comes and goes like the waves of the ocean. I am certainly feeling that. I can go along just fine and then suddenly something will trigger tears.

We can’t run away from grief. Instead we have to go through it. We have to experience it. Hiding from it or trying to deny it doesn’t work. It can take a long time. Sometimes people have no idea what to say to us when we have a loss. Some comments can be upsetting but we just have to understand that most are well meaning.

It has been and will continue to be particularly hard due to the circumstances we all find ourselves in. Covid doesn’t allow us to do normal things that help us accept a death. Funerals are done with few people or put off until later.

In my case there is also moving to another city away from longtime friends. Being with family has helped but I am not in my long-term home and things are not as usual. I reach out by phone and electronics but it is not the same. I am lonely and missing my place in things. It will get better when we can be with people but for now it is hard.

My faith helps and I find myself leaning on God for support more than usual. I guess loss makes us reach out and understand what is important to us. God is my rock that I stand on.

We all grieve in our own way and I will move through this and find new friends and people to do things with. Being able to go to church will help. Life does go on.

Keep on

Today has been a little trying. It is raining hard here and 42 degrees. Not the most fun weather. Actually I prefer snow to this. The cold rain is miserable and depressing. It has caused me to feel anxious. I want to be able to get the covid vaccine as soon as possible but since we moved I don’t know exactly how to get connected to let someone know we are both over 80 and at risk. I will have to research and get info so we can get the shots.

Out house also has had no nibbles but Christmas got into the middle of it being on sale so I am hoping with the new year things will begin to change. There are so many things to worry about and I know I have to just put them out of my mind and keep on keeping on. Sometimes it is just so hard.

I also need to find something to stretch my mind. The doldrums have set in. I will have to find some books that challenge me and get reading. I also received a keyboard for Christmas since I had to let my baby grand piano go. That was as really sad since I have had it since I was 8 years old. It was a part of me. Now I do have something to play besides the guitar and need practice.

Instead of feeling sorry for myself I need to move on and explore what is out there for me. There will be some things that I can do that are fruitful during this time and I have to do them. It is too easy to sit and do nothing except crafting and I have done enough of that. Time to get going!

Tough times

I hate to keep writing that days have been tough but it is the truth. Trying to divide what we want to move with us and what we do is confusing. Also, accepting that this is it finally. I have wanted it here but now that it is it is really stressful. I have been fighting anxiety and taking meds when I usually don’t need them.

Change is hard and not what we usually want. We need this and it will take a while to get things organized. So many doctors to set up for my husband and visits to them. When we get it all set up it will be a gigantic relief. We already have an appointment with an infectious disease specialist and that is the most critical one since his primary problem is the infection in his knee replacement.

At some time I will be able to think again and write about interesting topics instead of whining about my stresses. I am looking forward to that. I have also written so little on my other blog “heargodinothervoices.” my thoughts about God have been thanking him for his support with me and his continuing care.

This week will be busy so I will write when I can and know that the community will understand and support me.

Dreams can echo life

Last night I had a dream about trying to cook at meal, at the last minute, for a large group of family members. It seemed to be partly my fault that it was last minute but I couldn’t find the right things to cook. It was in the kitchen I grew up in and everything was wrong. The meat was huge and had to be cut up to cook but looked like nothing I have ever seen before.

I have always had lots of odd dreams and this one was not unusual but I wondered where my mind was headed and if I could connect it with anything going on in my life. Maybe it does in some ways. I do keep trying to get things done and it seems that everything is so difficult. Nothing goes easy. That may not be that unusual but is being amplified by covid.

The frustration of the whole situation, my husband’s illness, covid and all that goes with it are getting old. I am not the only one who is feeling this way and waiting for some good news. It will come….please let me hold on until it does.

I don’t know that any of us have ever been through this kind of situation. We were not alive for the last pandemic and waiting for it to end had to be much worse. Now we will always remember this year and those who come behind us will hear us talk about what happened.

So what if the sky is falling?

Yesterday was a milestone. We were able to take my husband out for an early dinner at an outdoor restaurant. Afterward he was exhausted but happy. I know how good it must have felt for him since he has been completely for so long. Boredom and cabin fever have hit hard since he couldn’t even get outside except on the porch. Out there it can be so hot that it is not worth it.

I am so tired of doomsayers. People are already warning about the next pandemic. Whether they are right or not is immaterial. We can’t live in constant fear. For one thing we would all suffer PTSD and go nuts. Eventually we would die out as the human race. Suicide by fear is not the way I plan to live.

I am focusing on how to live each day and appreciate what it brings. There is no other way. I have struggled most of my life about learning to live in the moment and now I am getting closer to that. I will not spend each day in fear and anxiety frittering away my time. Life is too precious for that.

Blowing up and moving on

The stress of the last few months caused me to finally have a melt down. I was suddenly afraid that I will not be able to keep my husband and I from contracting covid. He is due home tomorrow and covid would be a disaster for him.

I realized that this falling apart was due to the extreme stress that has been happening and that I was due to crash at some point. You might say I was entitled to break down. the good part is that with medication and my daughter being here I have recovered and am again moving on.

moving on

There becomes a point when things compile for such a long time that just letting all the anxiety out helps you to free yourself. I am getting stronger again day by day. This long situation with covid has strained all of us. For me it was on top of struggling so hard to find out what was actually wrong with my husband and being able to do something about it.

When things bottle up for too long we will explode like a volcano. The pressure can just be too be too much. My daughter pointed out that having someone here made it possible for me to feel safe letting go.

Now I will be able to focus on helping my husband recover and get us both through this irritating crisis. Life will be good again. Different but good.

Another Challenge

This is going to be a simple post.Since last Thursday I have been with my husband at the mayo clinic.He has been quite ill With an infection In his knee replacement. He also had some mild congestive heart failure.That has now resolved And the only issue is the infection in his leg.This is a serious infection and will Require Long-term Antibiotic therapy.We should be able to go home And have his therapy completed at home.I ask For prayers for his healing And that the infection is able to be cleared.I have missed my word press family During these few days and hope that I can keep up better.

Whether there is weather

I was wakened in the middle of the night by my Alexa light blinking at me. I asked it about the notification and was told that we had flash flood warnings. We are not in that area and I wasn’t thrilled but the light woke me.

It is amazing how much we all count on technology. I love Alexa and use it for all sorts of things from meditation to “what is the time, weather?’ I wouldn’t call myself addicted but it sure is handy.

When the power goes out we realize how much we depend on electricity in our homes. We are blessed to have a generator since we are in a hurricane area. It doesn’t work for the whole house but the parts that it does make storms livable.

Hurricane season is upon us and after what happened a few years ago I am not looking forward to it. I have to say though that I would rather than than a tornado. At least we can have time to get out of the way. Property may be lost but lives can be spared. I pray that this hurricane season doesn’t devastate anyone. Nature can be so unforgiving.

and fall

Since we have had such a difficult spring it would be nice to have summer and fall to recover.