Help—things are out of hand!

It is easy to go insane with anything due to a medical issue today. My Dr ordered a med for me over a week ago. I am blessed to have have the benefit of being covered under a long-term military insurance and so have to use express scripts. For routine medications this is not a problems but when it is a new rx or something expensive then weird things happen. My med was ordered last week. The ES countered with a request for the doctor to approve mailing it. My DR called this in. Then they wanted something more which wasn’t listed. She called again and sent a partial fill to a local pharmacy. The pharmacy, while getting approval, was told that it couldn’t be filled until March 25th. I spoke with the pharmacy and they were going to call again for approval. I called Express Scripts and they told me the drug was shipped out today.

With my experiences in nursing I am at least able to attack the issues with some knowledge and find solutions. It is impossible for the general public to manage such complex systems.

It has also reached the point where if a person is in the hospital they need to have an advocate with them or things go wrong.

What are we going to do about this mess?

Medical practise has gone horribly wrong

Has anyone noticed lately how difficult it is to get a diagnosis. My husband went through months of illness before someone was able to find what was acutally wrong. I have run into so many people who are having the same problem.

Is it because we no longer have any doctor who really knows us? It does seem that could be part of the problem. No one seems to really listen. My husband complained about his knee for months but no one ever checked it until it was found more or less by accident.

I really think we need to seek out a primary physician that we can keep long enough to understand our life and our family. Very hard to find any more in this era of switching insurance, both us and our changing health environment.

When we were at the Mayo Clinic the first physician was an “attending” (head and teacher) in the ER. He mentioned that one of the hardest things to teach new docs was to see the whole person not just the piece that brought them in. He certainly was a special doctor and so right.

I have written a lot about the medical system mostly because it has gone so horribly wrong.

Unconditional love

This post should be a challenge since Word Press has decided to put us all in the new version. I have played with it a little and now I will have to dig in and see how it works.

Each day is a challenge. I never know what is coming next and I suspect that this is the “new normal” for me. Today is another Doctor’s visit. Each one heading toward some ideas of what things will be like from here on.

It rained hard night before last with lots of thunder and lightening. One of our bassets obviously had some trauma before we adopted him and he was up all night shaking and crying. We have tried some different meds some with no success and some with side effects we didn’t like. I wish we could help him. We do snuggle him but nothing stops the shaking.

Amazing how much like humans dogs are. If I have experienced the trauma that I’m sure he did I hate to think the condition I would be in. The up side is that both dogs sense when something is wrong and show their concern by coming close to add comfort.

Dogs know hot to chill

I am sure that the dogs run the house. My husband doesn’t like to travel and leave them at home so he would rather stay home. He loves those dogs and they love him.

I don’t think I could live my life without a pet of some kind. I grew up with dogs, outdoor cats, chickens, ducks and turkeys. In college I had gold fish that I hauled back and forth during summer breaks. They lasted all four years. Funny, I don’t remember what happened to them after that. I suppose my mother took them since I married and moved away.

This covid confinement would have been much worse without our dogs.

Making choices

Another day of sitting in my house and outdoors on the porch. It is beautiful but warm out. May is when we usually start almost summery weather. The yard is a mess so I hope that the yard people come tomorrow.. We don’t have them come often. It is too expensive but once in a while I need help to catch up. After they come I must get out and do some things myself.

gardening

I do enjoy working out in the yard except when it is super hot. It try to get out early in the morning and come in before it gets to me. Good hard work is the best exercise and I have been bad lately about avoiding it.

The prediction for us here is that we will have a huge surge in virus cases as things open up since we have not had a peak yet. We stayed inside before it really came here and now the timing my cause us a headache.

risk

There comes a time where some things that have been put off by this virus just have to be done. My husband’s medical issues, though not life threatening, have to be dealt with so some Dr. visits are necessary. We do have to live our lives and do the critical things in spite of the risk.

Years ago my youngest daughter was going to Japan as an exchange student. Shortly before she was to leave a commercial place was shot down by mistake. I don’t remember the exact circumstances but I was afraid for her to fly so far. My husband made the comment that we can’t stay away from risk forever. We do have to take some chances….reasonable ones.

I think the country may be coming to that point. Some places have peaked and it may be necessary to go out for some things. Those of us at high risk will shelter as much as possible but there will be limits.

I will wait with hope

prayer for hope

My husband remains in hospital without any word on a diagnosis. I have done some research on my on and have some ideas to pass on. As a nurse I do know when the information is reputable. I will just have to take one step at a time.

I have had so many calls from friends that it has given me such a boost knowing how many care. This is just a bad time to have this happen but there is nothing different to do. I will continue to attempt to talk with the physicians working with him even though so far I have not heard from a single one. This is a common problem with hospitals and doctors and I will be stronger about insisting to discover what they are thinking. The hospitals here are not yet full of covid patients and are actually functioning well so there is no excuse for no information.

 

Tomorrow is a new day. According to the nurse they have some labs pending so maybe some answers will come.

Placating my anxiety, depression and stress with prayer, TV and walking outdoors. I am unable to do some things as my brain is not up to par.

When nothing can be done it is necessary to accept that and do only what is possible. The prayer from AA sums it up perfectly.

God, give me grace to accept with serenity
the things that cannot be changed,
Courage to change the things
which should be changed,
and the Wisdom to distinguish
the one from the other.

Thank you for your prayers.

The day to forget

I was not able to write last night. I was mentally and physically exhausted. It was a day to delete from memory.

yard work funnyIt started out fine. I actually worked in the yard for a few hours. Took a shower, fixed lunch. It was then that I realized my husband was not all there. His conversation was totally disoriented. Having seen this once before I had an idea what was wrong. He is 82 and as we age if we get a urinary tract infection it can make us out of it. Sooo…I tried to get him to go with me to the local drop-in Dr. We have been there before with great success.

 

JekyllHyde1931Unfortunately my sweet man had switched into Dr. Hyde. He had 4 insulin pens on his desk and was telling me they were wrong. He yelled at me when I tried to get him to go to the Dr. My son was at work and he can usually get him to listen but it didn’t work. I finally ended up calling EMS.

The two young men who came were really nice. They checked him over and agreed with me that UTI was the most likely culprit. They also felt that the drop-in doc would be great as we should stay away from the hospital with all the virus around. They also could not convince him to go. Then I had a AHA moment. He always listens to his primary physician and will do anything he says. His office was closed but I had him paged and he called back immediately. He told my husband to go with me….of course he listened to him and the paramedics went with me to get him in the car and off we went.

The Doc checked him out and he did have a UTI and now has the medicine and is even some better this morning.

a-bad-day-knowsyouhad-smiles-to-cheer-you-up-funny-53205706

Don’t want to relive yesterday but today is already better! YEA!

Hunkering down

Like most of us these days I am concerned about Corona Virus. You would have to have your head stuck in the sad to not be aware of the danger around us. Since my husband and I are in the vulnerable group we do have to be careful.

I think this is the first time in my life where I have felt anxious about being at risk. When we are young we think nothing can hurt us. As we grow older we can see the pit falls that could harm us but to some degree feel they happen to other people.

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The thought of being quarantined in the house for weeks is daunting. I am an extrovert and enjoy people. I will miss my interactions with others but I will manage. When I think about it I can feel my anxiety pulling at me and I am holding fast to my ways to avoid any problems. If one of us get the virus then I will be panicked so we will hold the fort at  home as much as possible.

I have written about this happening before so I am not surprised that it is happening. After the two other viruses (Mers and Sars) it was like waiting for the other shoe to drop. Thank God, although serious enough, it is not more serious than it is. I pray we don’t have another anytime soon.

National Emergency

Well today we have been told that this is a National Emergency. This virus has awakened people to the danger of illnesses arising that can cause major havoc. I think many have seen this coming but no one wanted to believe it. I am sure that all of us are worried and anxious about what the next weeks will bring.

I am hoping that the measures outlined today by the president and others will help this pandemic to fade quickly. Maybe it will help us to have measures in place to react more quickly.

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The next while we will see some logical responses and some idiotic ones. Who would have thought there would be a run on toilet paper? I hope that everyone is covered and there will not be a toilet paper panic.

I am so sorry for those whose lives will be ripped apart by this pandemic. I hope everyone will be able to manage during this time and not be devastatingly impacted. Prayers for all those who suffer from the virus whether physically or economically.

Lifestyle and health

As I was out walking today I thought about how many of our illnesses are caused by our lifestyle. Heart disease, some cancers, COPD, and many others are directly linked to how we live.

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I was reminded of a friend of mine who smoked. Each year she stopped smoking for Lent and then started back up after Easter. What a crazy thing to do.

Image result for healthy lifestyle and mental healthSome problems arise because of our mental health. Anger can be linked to stroke and high blood pressure. Anxiety and depression can lead to suicide. I don’t think we cause those problems ourselves but they may be, and frequently are, linked to our childhood. Our parents were responsible for how we were treated as children. In some cases this was good and in others not. It can be a major struggle to overcome childhood trauma and it does affect lifestyle which in turn affects health.

More and more we are learning about the link to our lifestyle and our health issues. I hope that we are able to make better decisions for ourselves as we learn and especially for our children. Maybe the more we learn the healthier we will be.

Drugs and Devices

My husband is scheduled in April for the implantation of a device to prevent clots. This started me thinking about such devices and prescription drugs.

The FDA regulates drugs and devices used in the US. In general this is a good thing but there are some holes in the system.

If a device is very similar to another device it can be approved without as much testing as the original. This can be used by companies to slide in products that have not had the extensive testing required by the original. For example, there is not just one heart valve replacement on the market and they may not all be considered equal.

Image result for implantable medical devices

There are similar issues with drugs although the problem can present in a different way. Has anyone wondered why the company that raised Insulin prices astronomically was able to do that? A small change in the medication made it able to considered a different drug and was therefore allowed a different patent allowing the price gouging. Insulin was originally given away by its creator in order to help mankind. Look what has happened now.

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We have so many problems with our medical system and these are ones not always at the forefront. If only we could all care about the patient and not all the outliers how wonderful the system could be.