This has been a difficult week and it’s not over. My husband is working on a house we need to sell as our age makes it difficult to care for it ourselves. We have been doing repairs on this rental house for years and it is time to stop. Unfortunately, we didn’t plan well and now we are trying to get work done so it can be sold. Nothing like adding this on in the midst of going to the Mayo Clinic, getting ready for Christmas and life in general. Our friend who loaned us the RV has never used it and we don’t know how to work the many devices that we have to use to work things. She has no idea either. I guess we will take it to an RV place tomorrow and hope they can help. I feel as is everything is frustrating. I find myself flying off the handle at every little thing.
I know that we can manage to work everything out but right now it seems too hard. I must find time to stop and take a deep breath…calm down and just let things come as they will. I will sign off for tonight and go meditate.
Today I was listening to Christmas music in the car and it reminded me of the controversy over some Christmas songs this year. The protests over things has certainly reached the point of the ridiculous. Someone always has to put a meaning that reflects their negative attitude on something that has been around forever. As someone said there are more victims that people.
One song under contention is “Baby, its cold outside.” My parents were around during the time that this was written (I think 1944) and there was no ulterior meaning to this song. Some of the phrases used were common vernacular during that era. Now we have to put a spin on it that reflects today’s world and it just doesn’t fit.
The other song is “Rudolph the red nosed reindeer.” Once again something is being made of nothing. I have always seen that song as a positive to Rudolph. He wins in the end and his skills become paramount.
When is this craziness going to stop? It is becoming impossible to say anything that will not offend someone. Any common sense has been thrown out the window. I can envision us in a future where there is no music, or books, or speeches, or talking, or ads, or TV, media or anything. It will be a silent and sullen world. Everyone will always be angry with others. Eventually we will kill each other and there will be no one to complain.
It is impossible to please everyone and offend no one. If everyone carries a chip on their shoulder there is no way to fix it.
When will we put away all this anger and contention and turn to kindness and love? That is the only thing that can save us.
One of my word press reads talked about having a 26 hour day. It reminded me of the book about Alzheimer’s with that name. Living with someone whose mind is slipping away moment by moment is excruciating. It is hard on those who are losing themselves day after day but it is harder still on those who are watching it happen. Losing the person you love until they no longer know you is beyond terrible.
I have worked with families dealing with this crisis and it is so difficult and painful. It is so hard to cope when the muddled mind changes reality. Caregivers want so badly to correct the thinking and this exacerbates the situation. We want so much to bring them back to who they were and caregivers have to learn to live into the persons reality. I used to visit someone who thought he was living his 20 year ago life. When we talked I had to accept his viewpoint and talk with him about life as he was living it. This is much more difficult for the caregivers.
As the disease progresses management at home can become impossible. Frequently the patient has something called “sundowners.” This means that they are alert when everyone else needs to sleep. A friend of mine’s mother climbed out a window in the middle of the night to “go home.” How can the average family cope with someone who could leave the stove on starting a fire or turns on the bathtub faucet flooding the house? Caregivers are stressed and exhausted.
In the USA the other problem is the cost of care. Many people have to manage care at home with little help. Their day becomes the 26 hour day. Be kind and compassionate for those who are care-giving someone with this illness. Help where you can. Their life is disintegrating one moment at a time.
Today has been one of those day where you could say “I shudda stayed in bed!” I doubt it would have helped. I have been doing so well and just chugging along in spite of the total chaos of my life at this point. Well, as you might imagine, that didn’t last. Again struck down by an episode of IBSD. Just when I think I have it all under control….WHAM!
Of course the problem is that I haven’t been doing anything I should. My diet has been awful, no meditation, insomnia, and whatever else can mess up. Today I went over the edge and realized this has to stop. When you are afraid to go anywhere because of IBSD it is time to rethink.
So, back to real food, a good schedule, meditating and being sure to keep as much as possible stable and ignore the rest. It is amazing how easy it is to let all the things learned about keeping stable go right out the door.
It’s terrible when you know how to stay well and you just let it go. Life is always better when we do the things we should.
Stay on the right path and keep going!
Do you ever feel as if life is out to get you? I have felt that way lately. Superstitions abound about this….things come in threes, if you have too much good then bad is coming. Sometimes it is a self fulfilling prophecy. When a lot of things keep happening you start to feel vulnerable. You are having lots of bad luck. It starts reminding me of an old country/western song that says “if it weren’t for bad luck I’d have no luck at all.”
Ever since this knee surgery process was begun it has felt that way. The big good is that the surgery was successful. It seems that everything else surrounding it has been complicated and stress causing. I feel like “chicken little” running around saying “the sky is falling.”
When Hurricane Michael hit the Florida coast I felt such empathy for the people devastated by it. We only got the outside fringes as it went up the middle of Georgia and other states. We had some wind and rain. Very few areas lost power. Unfortunately, two houses away from us there is a vacant lot and some very dangerous trees. One fell across the power lines and we were without power for about 18 hours. This is nothing compared to what others are going through but it just seemed that the bad luck genie was striking again.
I have been pretty free of IBS issues for a while but of course this kicked the whole thing up again. Some medicine has helped but made me tired and cranky. I just want this to stop. I seem to be complaining when lots of people are so worse off. It makes me feel guilty.
Sometimes it is so hard to control our emotional reaction to events. They hit and our minds and bodies respond before we can slam on the brakes. I can see more work on my part tending my coping skills.
I hate a messy, dirty house but have not felt like cleaning and the mess just makes me feel worse. I need organization and I have to work hard on that right away. I can’t even call someone to give my house a one-time clean as I need to pick up first. It is really bad when what you need to do is clean before someone else can clean.
I know this will all resolve and I am ready for that. I will put on my big girl pants and get to work and I know things will be better. I know that bad luck is not the only kind I have. God will make sure of that.
Today has been up and down. I realize I ran myself into the ground planning, traveling, cleaning etc to get ready for my husband’s surgery at Mayo. My immune system was bottomed out. So, after getting a cold while at Mayo, I ended up with a sinus infection and on antibiotics. I am someone who seldom gets sick and to say it unsettles me is an understatement.
I am worse than the parents of the children I saw when I worked for a group of pediatricians. The child would be put on antibiotics and the parent would call later that day saying he/she isn’t well yet. (completely true) I have been given an excellent treatment and I want to be well yesterday!
Feeling down and sick is not fun. I am not sure which is at the top but I guess it doesn’t matter.
There are so many people suffering with physical illness and coping beyond amazing. There are so many with mental illness who are also suffering and coping. My oldest daughter worked at a children’s hospital in a unit called “Adolescent Med-Psych.” That unit cared for teens who were having mental problems because of their physical problems or the reverse. They handled teens with diabetes who didn’t care for themselves, and anorexics with who had created physical problems from their diet. Some patients had severe mental illness that had led to physical problems. I don’t know how she worked there. The anguish of both teen and family must have been horrible. She loved her work.
Many of us don’t take care of ourselves. We let our emotional problems cause physical symptoms. Conversely, we can’t cope with the physical problems and let them move over into emotional problems.
I think the coping skills for the two things are similar. We are whole. We are not a separate thing. Our minds and our bodies and forever connected. To flourish we need to care for both. The things that we do for our mental health help out physical health. We know that meditation, mindfulness, and managing stress have a powerful affect on our bodies. Keeping up with needed physical exams is also critical.
We need to continue to learn and use coping skills that work for us. Not everyone is the same. Keep testing and trying different things until you find what works for you. It will pay off in big benefits in the long run.
Expectations. Something that can really send us into a tail spin. It seems that there are always people expecting things of us. We can spend our whole lives trying to live up to someone’s expectations.
Too often those expectations are not appropriate. Sometimes they are actually too low because we are thought to be damaged because of mental health issues. That prejudice can make us feel “less than” and sets us up for problems with self esteem. Labels can be so damaging.
The other side is when expectations are too high. They may not be logical or reasonable. We are set up for failure and again threatened with low self esteem.
Challenging expectations that are too high may require discussion regarding what is appropriate. Too often anyone can find themselves pushed by overwhelming expectations. It is part of the society we live in. Sometimes it’s hard to bring it up, as for some, jobs could be on the line. The most important part is to recognize when it is not your issue but someone else’s. Don’t let the situation affect your own sense of self worth.
Somehow we need to find a path down the middle. There may not be anything that can be done about other people who give us labels. Until things change just consider the source and move on. If it is just an education problem that can be solved. Continuing to work within your own abilities solves many issues.
Watch out for people who want you to fail or who want to put you down. These people are toxic and need to be avoided.
We also have to be careful in setting our own expectations. Setting them too high or too low can make us feel inadequate. We have to find a reasonable path.
Remember you count! Your life matters too! Seek the place where you can find success and self affirmation.