It is difficult to face each day thinking that whatever chronic problem you have will never change. Yet, there are people who do and live fully each day. Their “fully” may not look like yours and mine but for them it is enough.

How do we learn to live in the “enough?” I do wonder. Could I do it? I don’t know and I have to say I don’t want to find out. Maybe the stressors that have been present in my life would have swamped someone else. Maybe each of us can best manage our own problems. I have mentioned before that at a conference the leader asked everyone to write their biggest and most pressing problem on a sheet of paper. Those were passed forward and put in a jar. She then asked if anyone would like to come and draw one out and take it on. There were no takers.
Our expectations of life can be so extravagant and unreasonable. I know that those who grew up in problem homes may not have seen things that way but many of us did. We want everything to go exactly the way we want. We don’t look for life to knock us down. When I grew up with IBSD I thought it was normal. In those days people didn’t talk about it. For that reason I just accepted it and moved on with my life. Fortunately, I had some breathers between episodes so I coped pretty well. I just battled through when it caused anxiety and depression. I guess in some ways ignorance was bliss.
I know so many people who are living with issues that seem insurmountable to me. I think I would be crushed by them but they are living each day. On Word Press I read someone who has ALS and writes about his faith and love for his family. I used to visit a lady who had lived her whole life with Cerebral Palsy, in an electric wheel chair. Part of it was spent in a nursing home as a young adult. (imagine having to live with only the elderly for company in your youth) She was able to live in an apartment after changes were made in disability coverage. She was always cheerful and grateful for her life.

It is people like them who help us to see that life is about choices. Will I choose to live a life of “poor me” or one that is grateful for each day no matter how difficult. We are entitled to get down but not to stay there. We have to learn to continue learning, being grateful for life, coping and growing.





There is also the problem of responsibility. Some families have solved their children’s mistakes so many times that the child has no sense of responsibility for their actions. They have not suffered any consequences. Unfortunately, we need to be held accountable early on in life or when something happens that can’t be fixed then the result can be devastating.
I have been thinking about the words “status quo.” There are many people who struggle against change of any kind. They fight for things to remain the same. The problem is that things never stay the same no matter what.
Coping with change is one of the critical lessons we can learn. The ability to let go of our previous “normal” and move on to another has a lot to do with our state of mind. For those of us who battle anxiety change is a trigger word. It can send our whole world into a tailspin. Coping mechanisms for dealing with change are a must. I have a friend who says that when change happens that is negative we are entitled to fuss, fume, and cry about it…..for 24 hours. I have found this works. Just being able to rant for a while seems to get some of the frustration out and it helps me to move forward. I may be having a pity party alone or with someone…it doesn’t matter. It helps either way. There is a positive to venting. Let all those feelings out! Then move on.
I feel as if I am in a time warp where “normal” has been taken away. Monday we experienced what I call “the perfect storm”. One of those days where everything you touch turns to #%&*. I discovered that the RV we planned to take to Mayo had a problem somewhere between the generator and the things that work from it. Things just didn’t work. So we scrapped that idea and went to plan B. In the meantime my husband and grandson worked to remove some leftovers from the rental house we are selling. While taking things to the dump the trailer they were using had a flat time (at the dump) and the tire had to be taken to fix.
Today has been an interesting day. The plans for our trip are changing daily. I may stay home part of the time. Family may stay here. We will just take one day at a time.
The other night I had the strangest dream. I was in a situation where all I did was wait. I won’t explain the whole dream but it was obvious waiting was the point. I was with others and waited for hours. I got very upset and angry because the wait was due to poor management.




